Hey, kittens! How's tricks? We have had a busy week here. Christa, my sister in law, was here, plus we (and when I say we I mean my family and friends,) participated in the run or dye event in Dover this Saturday.
I also got some more discouraging news on Friday. It turns out, once my hCg got to <5 according to my home lab, it needed to be sent out to the Mayo Clinic, the closest place that is able to measure the quantitative, or quant for short, value. When we asked to have the quant run, we were assuming the value would come back 4, 3, 2, etc. Since I was supposed to finish my last round for hitting undetectable this coming Thursday, I guess we just assumed everything was fine. But when we asked for the bloodwork, they said the doctor needed to review it first. Dr. Sehbai was out of town at a conference. So, they sent an email asking him to release the results. The following day, another oncologist released them.
We were absolutely floored. The first reaction, of course, is, what the hell does this mean? Is it a lab error? Typo? Am I dreaming? Because this feels a bit like a nightmare! So, we called Dr. Sehbai, the kindest, most dedicated doctor there is, and he tells me not to freak out (not in so many words, but you get the idea.) So, the next step is to determine if there was a rise in hCg. I also contacted Dr. Cadungog, who explained that if there was a rise, this would mean I am chemo resistant, and need a different protocol, EMA/EP.
The following day, they tested my hCg and sent to the lab I have been using all along. It determined that my hCg is still <5. So, no rise. But, ten is ten is ten. If the Mayo Clinic, which has apparently more sensitive equipment, says ten, I'm not cured.
I'm not cured?
Again, when I posted my last blog, I was filled with anger and frustration. I thought that this was the worst it could get, a delay in my last round. As it turns out, I now am more than likely going to be needing more chemo. And the kicker? I have run out of short term disability days at work. So, for my next round, I will have to be actively working while getting chemo. Fortunately, after working 14 consecutive days, I can open up another short term claim and go out of work for another 6 months. I have no idea how I am going to get through those two weeks, though. I am exhausted as is.
It was really important to update my readers, but I am just not sure at this point what is happening or where we are going with this. I am going to try to get a blood draw ordered and sent back to Mayo sometime before the day I am due to see Dr. S and have chemo again (this coming Thursday.) I wish I didn't have to do any of this, because my charming cousin Tammy invited me to visit her and her son, James, this week. I am so ready to get in the car and just disappear for awhile..... Run away....
I will update as soon as we know more.